National Carers Week 2019

It’s National Carers Week in Australia.
This means a week of recognition but why should it end here…

Like many events that take place it highlights an issue for a day, week or month that people are faced with every day of the year. Meanwhile for those in our communities who are not exposed to these situations often forget that this is ongoing, which is why these celebrations should continue all year round. Carers are unsung heroes, with the obstacles they face, the challenges they endure, every day to still get up and embrace the world providing the best you can for your children with Autism. It is a job that you did not apply for, a role that you did not see on the horizon and the financial reward is crap yet amongst all this you have been blessed with these beautiful children which all have their very own unique gifts for us to find within each one of them.

Being a Carer comes with high demands.  Yes, it’s something you do, even though you may not always want to…  It’s  a job that is often 24/7, juggling the needs of everyone, which leads to little time for you…  Something, that in the desire to provide the best you can for your child is often forgotten.  Being a carer you tend to become more focused on ensuring everyone else’s needs are met, meanwhile failing to acknowledge your needs as an Individual, Wife, Mum, Husband, Dad or Partner let alone the needs of your other children…

Life becomes demanding very quickly when there is so much that needs to be done and as a Transformation Coach I often see parents that don’t know which way to turn to achieve what they need, let alone how to overcome that feeling like they are doing it all alone… The people you used to connect with, no longer understand your world, as it is very different now to what it was before, and the parenting skills you thought you had, have been thrown out the door… The manual that is believed to come with kids does not exist and if it does we clearly all got the wrong one. Bless the person who has ours, as no doubt they will be struggling too… Instead we have been given a gift to unwrap in whatever way we choose, to not only provide the best for our children, to also become the best version of ourselves.

It’s a path that has given us a tour guide that will take us places we have never been and often places we never intended to go either, but at the end of the day our love for this child as their Mother, Father or Primary Carer will still be as great as any of our children. It’s about having the persistence, determination, courage, perseverance, will power, strength, endurance and patience to continue no matter what obstacles may appear… It’s knowing that you have your eyes set on a goal and when all the stars align – whatever they may be at the time that you will open the door to the opportunity you have been manifesting for some time…

It’s definately no easy gig and not for the faint hearted. Sometimes it will feel like there is more lows than highs, that consume you, making you feel like you are drowning in a world of unknown. Then out of the blue something amazing happens, when your child with Autism provides you with the greatest reward of all – achieving a milestone. Milestones that can be big or small. Milestones that are often miles apart, but that feeling that comes from within knowing all the hard work you have put in has paid off, is the best gift you could ask for…

This is one of my passions and a key focus in all that I do.  I feel that it is an area that needs more understanding and emphasis in all our communities, no matter where you are on your journey. With support and guidance you can discover so much about you and your children along with the benefits of taking care of your Mental, Physical and Emotional Well-being too… You are at the heart of this journey and you are more important than you give yourself credit for, which is why it’s time to reward you for the amazing job that you do as a Carer who invests every possible moment in your child to assist them in achieving their potential…

It’s not something that can be put away when you have had enough. It is an ongoing journey of continuous building, exploring, learning, nurturing, resolving, loving, gaining and honoring you for the amazing job that you do, should always be part of this… It’s time to acknowledge this and I feel it’s time more people in all of our communities no matter where you are throughout the globe are more accepting of this too… To do this we need to provide more education by being out in our communities where people can see the struggles we endure in reducing isolation for ourselves, ASD Child and Family. Together we can make a difference for all families Living Life On The Spectrum.

To find out more about our #LLOTS Community join us at
Living Life On The Spectrum