Reality of a Child with a Disability

Brick Wall

 

The reality that our life was totally about Ethyn hit with a tragedy in 2007.  A weekend away with a friend and our children, which was to start with me attending my cousins Wedding, only for things to go very wrong, with Ethyn falling out of a hotel window.  It was in this life changing moment I realised I had lost who I was as a Mum, wife and as me. Everything I did was all about functioning, surviving and how we could provide the best for Ethyn. There was no time for me to really enjoy life. Visiting friends was a challenge, carers were hard to find which had isolated us from the social world and weekends away were now added to that list too due to never ending demands and challenges with Ethyn…

 

I know there is more to this moment in his life and I look forward the day that he can share his perspective of what happen. For me it was about appreciation that in an ironic way Autism is most probably what saved him that day along with his guardian angels that were there to catch him otherwise I doubt he would be here today. To see your child happily looking out the window and the next minute hear a scream is not something you want to happen to anyone…  Even the staff at PMH could not believe that he survived the adventure resulting in only a green stick fracture…   The events that unfolded from that moment on changed many of my perspectives in life, from the way I felt to peoples understanding or lack of when it comes to dealing with a child that has Autism.

 

You soon discover that you are the wealth of knowledge in a situation that you feel you have no control over, as you are his mother and do know what’s best no matter what anyone else says.  As hard as situations may be and others may have the best advice based on their training and knowledge, the difference is do they understand how this situation will impact your child.  Now I have to say I would never wish this situation on anyone, what I do want you to understand is the REALITY in all this is don’t wait for a major event to occur before you realise that you have lost your identity, or to realise that you should speak out more due to the events that occurred…

 

Oh how one situation can change your plans and direction in so many different ways….