A Day In The Life Of Having A Child With Autism

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I sit here after having a day that’s been a phenomenal ride on this journey of ours.  I’ve turned obstacles into opportunities, shed some tears, felt defeated and ended the day knowing I have done the best I can… For many they would say this is a typical day. For us with ASD children it can take us to the extreme especially when you feel you are making progress and everything comes crashing down once again…

This morning Master ASD did not want to get dressed for school and was very persistent that he wasn’t going. After him persisting with his objection for some time he took me to his room for other clothes. He chose some casual clothes and I left it at that and thought we will give him time to unwind and see what happens when its time to depart. It was not over yet. He was not happy until I had moved his lunch box of the bench.

Unsure of what may be I approached the topic before we departed and with a calm approach and with negotiation I packed his bag and he put his school shoes on… Ironically the shoes he said no to initially I might add. With a quick shout to his sister to come pack his uniform in a bag we were on our way fairly stress free. At school he was happy to get out of the car and I took his uniform in which he was asked put on and did so without any issues…

A great outcome where an obstacle was turned into an opportunity…

This afternoon I head to a meeting regarding my son only to get there to find out no one had informed it had been cancelled… Today was not a day for things to go wrong I was breathing after this mornings success but still had another situation to deal with this afternoon.  Thankfully the people were great and we discussed what we needed and then it was time to get to the school to pick up children which is when the next round of protests began…

On Wednesday afternoons our son does Community Access with an amazing mentor and they have a awesome time… The last few times our son has be testing the waters and today it went to the next level where we had to retreat to avoid a complete meltdown beyond the protesting he had already expressed…  It’s a moment in time where you feel defeated as we cannot control all situations on this journey or stop all situations from occurring and what we would like and what happens is two different things.

These children do have a mind of their own and no matter how much we would like something for them it is not always going to be the case, as maybe they don’t want what your are offering or maybe they have another plan in their head… Whatever it may be the answers are often at our finger tips but we have to open the right door to find the solutions…  These answers may not always be what you had planned on but it may be the way it’s meant to be…

“Look beyond the situation to see the potential…” – Naomi Amat

For us we have been down this path previously and I do believe part of his objection is that we have created such a great family connection that he prefers to do things with us and as a family. It is also about him having to give up time on technology which for our son is his passion and downtime. Unfortunately what he does not grasp is there are things that he enjoys that we cannot always do and there are things we do that he does not enjoy which is one of the many reasons we are encouraging community inclusion…

Ultimately on this journey times like this you get to the end of the day and go what on earth happen… This is the time to begin reflecting. It’s a time to go deep within and look at what you are truly trying to achieve. Yes I did feel defeated but ultimately I did succeed also as our son came home happy and was laughing for a good part of the evening.  He moved on to enjoy the decision that was made and as hard as it is this was a great outcome and now I have had time to reflect and ponder some ideas to change our strategy for next week :-)

No matter what happens on this journey I have learnt to use each obstacle as a teachable moment so I can then proceed to turn it into an opportunity… No I may not succeed immediately as it all comes down to you both being reading to embrace the change that is being implemented… If one of you are not aligned then this will not occur…

Each day we are given the opportunity to embrace change on this journey and today I would love to invite you to join me in participating in our FREE Online Event where you can discover the benefits of Embracing Change daily..